Day +9

Well I have to admit that this has got to be the hardest thing we have ever had to do with Katlyn. It is so hard to see your child in pain and not be able to do a whole lot about it. She has been getting these awful headaches in the morning and evening each day. So far we have been able to manage them with Tylenol but we let her know that if she needs more to let us know. The worst of it is that it is so bad that is causes nausea and vomiting. She is sluggish and doesn't move around much. Mornings start a lot later and even though today is started for instance, she is still laying in her bed nursing a headache and slowly trying to get some fruit loops down. As parents we do all we can think of to make her comfortable, but it still leaves us feeling helpless. Each day we watch her blood work. Right now we are not looking at the actual white blood cells as we know they are low and are going to stay low for awhile. We have been closely watching her hemoglobin and platelets each day and watching them go down. She is so tired and little bruises have been appearing on her skin. If her hemoglobin goes below 70 or platelets below 10, she needs a transfusion. Surprisingly and luckily Katlyn has never had to have a transfusion beside her IVIG treatments before. Today her hemoglobin is 67 so she will be needing a transfusion. Hopefully it will make her feel a little better. Please continue to pray for Katlyn. Right now we need to keep her safe more than ever as she is so susceptible to infection. I also hope and pray the headaches, nausea and vomiting go away and stay away too.