Katlyn's Struggle with ADA SCID

Tuesday, July 3, 2007

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Posted by Katlyn at 2:30 PM
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      • Day 68
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      • Just to bring everyone up to date. Katlyn is doing...
      • Katlyn's neautrophils have dropped again as of Fri...
      • A lot has happened since the last time I have writ...
      • See what that girl is up to. Playing with buttons ...
      • Day 45
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About Me

Katlyn
Follow 8-year-old Katlyn, diagnosed with adenosine deaminase (ADA)severe combined immunodeficiency (SCID). This is an extremely rare condition where there is a defect in her ADA gene. The ADA gene is responsible for filtering the body of toxic metabolites. In Katlyn's body, those toxic metabolites are not filtered and therefore, kill off her lympocytes, leaving her with virtually no immune system. Katlyn is has participated in a gene therapy protocol in Bethesda, MD at the National Institute of Health, but unfortunately it did not work. She is now preparing for a bone marrow transplant. Katlyn this is an account of when you were little and all you had to go through. We love you sweety!!!!
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Links

  • Gene therapy: Treating the bubble babies
  • SCID?
  • Sebastian's Space
  • SCID Stuff
  • Harrison's fight with ADA-SCID
  • The Blog Blog
  • Parker's Battle with ADA
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