Katlyn's Struggle with ADA SCID

Friday, October 19, 2007






Posted by Katlyn at 2:56 PM
Email ThisBlogThis!Share to XShare to FacebookShare to Pinterest
Newer Post Older Post Home
Free Web Counter
Free Counter

Blog Archive

  • ►  2015 (15)
    • ►  April (3)
    • ►  February (12)
  • ►  2014 (63)
    • ►  December (14)
    • ►  November (12)
    • ►  October (4)
    • ►  September (10)
    • ►  August (18)
    • ►  July (3)
    • ►  May (2)
  • ►  2012 (1)
    • ►  January (1)
  • ►  2011 (1)
    • ►  March (1)
  • ►  2009 (4)
    • ►  October (1)
    • ►  June (1)
    • ►  May (1)
    • ►  February (1)
  • ►  2008 (24)
    • ►  November (1)
    • ►  October (1)
    • ►  September (2)
    • ►  August (2)
    • ►  July (2)
    • ►  June (1)
    • ►  May (2)
    • ►  April (5)
    • ►  March (3)
    • ►  February (1)
    • ►  January (4)
  • ▼  2007 (118)
    • ►  December (3)
    • ►  November (4)
    • ▼  October (10)
      • Thanks to the NIH and Children's Inn
      • No title
      • No title
      • No title
      • No title
      • No Nap for Katlyn
      • Happy Thanksgiving
      • I know probably a lot of you have been waiting for...
      • Here's a link of my interview with CBC information...
      • Day 131 Post Transplant
    • ►  September (18)
    • ►  August (8)
    • ►  July (11)
    • ►  June (14)
    • ►  May (11)
    • ►  April (16)
    • ►  March (23)

About Me

Katlyn
Follow 8-year-old Katlyn, diagnosed with adenosine deaminase (ADA)severe combined immunodeficiency (SCID). This is an extremely rare condition where there is a defect in her ADA gene. The ADA gene is responsible for filtering the body of toxic metabolites. In Katlyn's body, those toxic metabolites are not filtered and therefore, kill off her lympocytes, leaving her with virtually no immune system. Katlyn is has participated in a gene therapy protocol in Bethesda, MD at the National Institute of Health, but unfortunately it did not work. She is now preparing for a bone marrow transplant. Katlyn this is an account of when you were little and all you had to go through. We love you sweety!!!!
View my complete profile

Links

  • Gene therapy: Treating the bubble babies
  • SCID?
  • Sebastian's Space
  • SCID Stuff
  • Harrison's fight with ADA-SCID
  • The Blog Blog
  • Parker's Battle with ADA
Watermark theme. Powered by Blogger.