Day +53

Day +53 Katlyn is doing extremely well. Her rash is almost gone completely now and she has been feeling pretty good. She was discharged from Saint Justines on Thursday and we were blessed enough to be able to spend the weekend at home!! It was amazing but extremely hard to leave. Katlyn spent a lot of time sleeping but she looks much healthier than when we first got her home. Each day she slept until noon, with wakeups for medicine. She also spent hours each day in the bathtub. So now marks the next chapter in this journey. We arrived at the IWK today. It's unclear how long Katlyn will spend here, but we just want to make sure we do what's best for Katlyn.