So we are soon heading back to NIH. We leave here on Sunday, leave Halifax on Monday morning for NIH and then we'll back in Halifax on Tuesday. Once we get back Katlyn has to go to the IWK for treatment, which is about 6-7 hours, and then we have to drive back home, which is a 8-hour-drive. Really it feels as if we just came back from Halifax and already we have to go again.
Not a whole lot has changed since the last time I wrote. Katlyn's counts counts have been about the same. She has been around 700 neautrophils and 100 lymphocytes. We got the hopeful news that Katlyn's lymphocytes did go up a bit yesterday. She was 220. Hopefully she will keep going in the direction. It's really hard to believe that in a few months Katlyn will be a year post transplant. She is still extremely immune compromised, so we have to still be extremely careful. Aside from keeping Katlyn away from sick people and keeping our home safe and clean, we try our best to live as normal as possible.
Today Katlyn and I went for a little walk outside and she had a blast. John started a new job last week so we have been missing him like crazy. Since Thursday he has only had one day off and he is working 12 hour shifts. I know it's got to be hard for him too. You can tell he is so tired and misses us so much, but I know he is just trying his best to take care of us. Frankly he is doing a great job. We love you so much honey. Thank you.
Katlyn will be turning 2 years old on Tuesday. Wow!!! It really is so hard to believe. Our little monkey is growing up. I just can't believe how incredibly smart she is. She is so sneaky and has so much spunk in her and makes everyday a great adventure for us. She has just started to help me clean during the day, by bring me the clean laundry from the hall, trying to fold it, unloading the utensils from the dishwasher and picking up her toys. She is such a helpful little girl. She is also very polite too. She is all ways saying thank you or no thank you. We are so blessed to have such a wonderful little girl. Katlyn you are the greatest part of every minute, hour every single day in my life. I just love you so much. You are so tough.
I took her to get her blood drawn yesterday and she didn't even shed a tear. I had to take her by myself so I was a little worried about her keeping amused while I drove, but she was fantastic. She was laughing and having a great time. The ladies at the hospital are fantastic too. They gave Katlyn 3 stickers for being so brave and patient.
I will be on here real soon again with pictures of our grown up two year old. LOL. Every time I say that it feels weird. It seems like just yesterday that we brought her home from the hospital.Happy Girl
I'm so hungry mom!!!! She spends a lot of time going in and out of the fridge.
The terrible two's coming on??