More Pics

More pictures of Katlyn's Canine visit.
Katlyn loves to press her whole face up against the window to see how far down the hall she can see.
Patty Cake. Katlyn does this all by herself now.
A nice family picture with Katlyn's face squished up against a window.
Daddy and his girl.
Katlyn's playing with Mrs. Potatoehead.
Stop bugging mom, can't you see I'm playing.
Okay, you got my attention. Now I want the camera.
Hi. Can I order some pizza.

Katlyn wearing the box that her plastic bottles come in on her head.
I swear that girl will wear anything on her head except what your suppose to.
This is Katlyn's Elmo balloon that she can't seem to keep a hold of.
I think she does it on purpose.
Once she got a hold of it she barely let the ballon out of her sight. Mind you I tied it around her wrist.


So on Friday night they gave Katlyn a dose of GCSF, this is used to stimulate her bone marrow to produce more cells. So anyway, yesterday morning Katlyn had her blood drawn and we expecting to see her numbers quite high and were surprised when Johnathan can back with a piece of paper in his hand that read neautrophils 464. I cannot even begin to describe how that made us feel. This was a sign that something very dangerous was going on with Katlyn. If the GCSF does not work, than there is a huge change that her bone marrow is not functioning properly. We were both lost. We were trying to find reason and make excuses. There is no other way to describe the situation other than it sucked.
So I wanted to take a look at all of Katlyn's numbers so at about 3 p.m. yesterday I strolled down to the nurses station and asked one of the nurses to print her numbers off. I swear my heart stopped when I looked down and saw that Katlyn's neautrophils were almost 7000. I could not believe it. I ran clear down the hall and barged into Katlyn's room and gave Johnathan and Katlyn the news. We were all jumping around and feeling much better. It was a mistake but apparently the nurse was very busy and wasn't paying much attention and gave us the wrong numbers. It could have been worse though, she could have been right.
So the G should wear off gradually of the next few days so we should see Katlyn's numbers coming down. Hopefully when she stops dropping, she stops at a safer level than she has been. So her doctor came in today and said everything is looking great and we should be a go for Tuesday. If all is the same, he will contact the IWK and let them know that we are ready to come back to Canada. So then we will just wait for the plane to come and get us.
Katlyn is doing great though. She is growing up so much. She produces several new words every day. I really am so fascinated with her. She can pretty much identify almost any animal and can count up to 12. She is a smarty pants. Right now we're in the process of switching Katlyn from lactose free formula to Regular whole milk and there hasn't been any problems. In fact, I'd say things look a lot better. Today we started her with a sippie cup and she learned to drink from a straw.
Honestly, Katlyn catches on to everything very quickly. She is a very smart little girl. I am so proud of you Katlyn, for everything.

Bone Marrow Aspiration Today

Here's some pictures of our little princess............



Here are some pictures of our little firefighter.....

So Katlyn had her bone marrow aspiration this morning and there were no complications. I don't know why I always get so stressed out when Katlyn is put to sleep. I just don't feel at ease until someone comes in the waiting room and says she's doing okay. No matter how many times we have gone through it, it doesn't get any easier. Each minute takes an eternity.
Anyways, two of the doctors took a look at Katlyn's slide of bone marrow and did see there was an abnormality there, but that it looks like it has improved since Katlyn has come here. That was very uplifting news for us. I couldn't sleep barely at all last night and I know Johnathan didn't sleep at all.
So she received a shot of GCSF tonight and we will follow her counts through the weekend to see how it does. If all is good on Tuesday (Monday's a holiday), than we will be free to go back to Canada. We'll just have to wait on the plane to come and pick us up.
The doctor also let us know that the patient before Katlyn (the first in the protocol) had to get shots of G twice. He's doing really great now and is back home in Argentina.

Update

Katlyn will be heading to the OR at apprixmatley 10:00 a.m. in the morning for her bone marrow aspiration. She will be put asleep for the procedure. I'm pretty sure that everything is going to go great and we won't get any surprises. As soon as they prepare the slide her doctor will examine it for adnormailites, and if all is clear they will give her the GCSF and we can go back to Canada. Timewise it's all dependant on when they make the slide. They may do it either tomorrow or Tuesday, as Monday is a holiday. And then after that we will just have to wait for the plane to come and get us. Also Katlyn will have some bloodwork in the morning and hopefully all looks well.
Please keep our girl in your prayers. I will update her blog just as soon as I get a chance.
Also, Katlyn is really growing up so fast. It is so amazing. She is in the process of being switched from formula to milk, and is doing great. She had been on lactose free formula, and now is switching to regular whole milk and there has been as bad effect. If anything things look better. Also, Katlyn is pretty much eating entirely all by herself. We are just so proud of her. She is a big girl now.

Day 99

This is us posing for a picture with our favourite nurse in the whole United States, Gene.

This is Katlyn getting a visit by Toffee, one of the caring canine at the hospital. This is a fantastic program, and Katlyn just loves those dogs. Especially on this peticular day. She had quite a bit more time than usual because a photographer needed some pictures. It was so funny because she always refers to a canine as a "dog," but on this day she way saying "doggy, it's a doggy."