Katlyn's Struggle with ADA SCID

I know that it have been way too long since I have been able to write on here. A lot has been going on since my last write up, which has mad...

So May 26 marked two years since Katlyn received her gene therapy. We marked the occasion with a routine visit to NIH. At first we were a li...

Sorry I have neglected Katlyn's blog for so long. We have just been so busy with life and have not had much time. Katlyn is doing extrem...

Katlyn had her fist tumor removed yesterday on her third birthday. What a day! We had spent the previous night in a hotel and because it was...

We just back from Katlyn's appointment at NIH yesterday and things went really well. Apperently they have been looking at some of their ...