Katlyn's Struggle with ADA SCID

Tuesday, September 25, 2007

Choo Choo

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Here we are painting a train for Katlyn Ta Da!! Katlyn in her new train. She seems really pleased with it. And so busy!!! My sweet Angel Tod...

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Well i have to say the last few days have been so amazing for us. Katlyn has been going outside quite often, so that is what we've been ...
Friday, September 21, 2007

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Katlyn is still doing fantastic. Things have been very exciting lately because we have been taking her outside, her numbers permitting. Yest...
Thursday, September 20, 2007

Happy Birthday Daddy!!!!!!

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We had a great day. I know it would have been better if we were home, but we made the best of it. Katlyn was allowed outside, and she spent ...
Wednesday, September 19, 2007

Some Pictures

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Katlyn Painting Happy Birthday Dad on her window, and painting her toenails. She had a blast. What a beautiful girl Chillaxing with her baby...
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About Me

Katlyn
Follow 8-year-old Katlyn, diagnosed with adenosine deaminase (ADA)severe combined immunodeficiency (SCID). This is an extremely rare condition where there is a defect in her ADA gene. The ADA gene is responsible for filtering the body of toxic metabolites. In Katlyn's body, those toxic metabolites are not filtered and therefore, kill off her lympocytes, leaving her with virtually no immune system. Katlyn is has participated in a gene therapy protocol in Bethesda, MD at the National Institute of Health, but unfortunately it did not work. She is now preparing for a bone marrow transplant. Katlyn this is an account of when you were little and all you had to go through. We love you sweety!!!!
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