Katlyn's Struggle with ADA SCID

Monday, May 28, 2007

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Thes pics are from chemo day when we didn't know if things were going to happen. So Katlyn was a ninja that day. These are pics I took ...
Saturday, May 26, 2007

Katlyn got her Cells Back!!!!!!!!!!!!

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Yeah that's right. Today was the day and it happened. She finally got the treatment that she so desperately needed. We have waited so lo...
Thursday, May 24, 2007

Another Crazy Day

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So Katlyn's chemo was supposed to start today and before I scare everyone, I just want to let you know it did, but it almost didn't...
Monday, May 21, 2007

What a Day

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I'd like to first off start by saying that Katlyn is okay. She is doing very well. What a day is right. We started off this morning not...
Friday, May 18, 2007

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So I just wanted to let everyone know that unfortunately the procedure was not able to be done today. It has been postponed. One of the hema...
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About Me

Katlyn
Follow 8-year-old Katlyn, diagnosed with adenosine deaminase (ADA)severe combined immunodeficiency (SCID). This is an extremely rare condition where there is a defect in her ADA gene. The ADA gene is responsible for filtering the body of toxic metabolites. In Katlyn's body, those toxic metabolites are not filtered and therefore, kill off her lympocytes, leaving her with virtually no immune system. Katlyn is has participated in a gene therapy protocol in Bethesda, MD at the National Institute of Health, but unfortunately it did not work. She is now preparing for a bone marrow transplant. Katlyn this is an account of when you were little and all you had to go through. We love you sweety!!!!
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